HIST1H1E - Defying the odds, not defining them

HIST1H1E Syndrome

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    • Home
    • About Hist1h1e
    • Our Research Physicians
    • HIST1H1E Journeys
    • Odgers Family Blog
    • Resources
    • Contact Us

HIST1H1E Syndrome

HIST1H1E SyndromeHIST1H1E SyndromeHIST1H1E Syndrome
  • Home
  • About Hist1h1e
  • Our Research Physicians
  • HIST1H1E Journeys
  • Odgers Family Blog
  • Resources
  • Contact Us

Contact Us

Get involved!

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Find more ways to help!


A charitable corporation is as strong as the community that holds it up. Together, we can do more than we can do alone. Let's bring our abilities and passions together to affect the lives of children with HIST1H1E Syndrome.

There are many ways to help us and support research.  Please contact our chief genetics physician, Dr. Kate Tatton-Brown if you or your child need to be added to our global registry.  Her email is:  Kate.Tatton-Brown@icr.ac.uk


Contact us to find out more about volunteer opportunities, fundraising events, and ways that you can get our message to your friends and family.

Hist1h1e Syndrome

California, United States

Anna-Lisa Odgers, Founder info@hist1h1e.org


Copyright © 2018 Hist1h1e Syndrome - All Rights Reserved.

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