Contact Us

A charitable corporation is as strong as the community that holds it up. Together, we can do more than we can do alone. Let's bring our abilities and passions together to affect the lives of children with HIST1H1E Syndrome.

There are many ways to help us and support research.  Please contact our chief genetics physician, Dr. Kate Tatton-Brown if you or your child need to be added to our global registry.  Her email is:  Kate.Tatton-Brown@icr.ac.uk

Contact us to find out more about volunteer opportunities, fundraising events, and ways that you can get our message to your friends and family.