HIST1H1E - Defying the odds, not defining them

HIST1H1E Syndrome

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    • Home
    • About Hist1h1e
    • Our Research Physicians
    • HIST1H1E Journeys
    • Odgers Family Blog
    • Resources
    • Contact Us

HIST1H1E Syndrome

HIST1H1E SyndromeHIST1H1E SyndromeHIST1H1E Syndrome
  • Home
  • About Hist1h1e
  • Our Research Physicians
  • HIST1H1E Journeys
  • Odgers Family Blog
  • Resources
  • Contact Us

Learn about Hist1H1e and our journeys 

Making a Difference - hist1h1e syndrome

Making a Difference - hist1h1e syndromeMaking a Difference - hist1h1e syndromeMaking a Difference - hist1h1e syndrome
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HIST1H1E Syndrome

Our Families

Our Families

Our Families

Our amazing families  are committed to sharing their story about HIST1H1E Syndrome.   Please go to the "HIST1H1E Journeys" page to find out more about some of our children.

Our Story

Our Families

Our Families

Seeing a need for connection and hope, we formed this community to educate the public about HIST1H1E Syndrome. We've consistently grown over the last few years through social media outreach and through the work of our doctors/researchers.

Our Mission

Our Families

Our Mission

We focus on making the maximum positive effort for our community. Our families and friends provide the momentum that helps us affect change. Through our resources, we hope to drive research/support for HIST1H1E Syndrome.

Stay in Touch

Sign up to hear from us about research, funding and events coming soon!


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